Families of children with rare, relentless Dravet epilepsy live with constant uncertainty
Kaylee Raia, left, and her mom, Carrie, center, work on a craft project at Camp Small Steps in Gurnee. Kaylee lives with Dravet syndrome, a rare and severe form of epilepsy. Courtesy of UCB and Dravet Syndrome Foundation Most parents worry about scraped knees, tumbles on the playground or gym class injuries. But for the Raia … Read more